Fertility platforms collect some of the most sensitive personal data imaginable: genetic information, reproductive health records, embryo data, and family planning decisions. Understanding how this data is collected, shared, and protected is critical.
Fertility platforms receive a failing privacy grade due to the extremely sensitive nature of data collected combined with broad sharing practices. These platforms collect genetic information, medical records, treatment histories, and deeply personal family planning data. Post-Dobbs, this data has new legal implications. Third-party sharing with employers, insurers, and analytics providers creates substantial privacy risks.
Employer-sponsored model means treatment data flows to benefits administrators. Genetic testing results and treatment outcomes tracked and reported.
Vertically integrated model combines clinical and benefits data. Extensive data collection across clinic visits, telehealth, and benefits administration.
Reimbursement model requires uploading sensitive medical documentation. Claim processing involves extensive health data collection and third-party sharing.
Telehealth platform collects extensive health questionnaires, chat logs, and consultation records. Data shared across provider network and with employers.